for Susandel

[Texasmujer]

Hi!! I was just browsing some sites, and I may have found one that can help you. Go to http://www.Rampantscotland.com and pull up "Ecology", where you want to scroll down to the site for
"housing for the disabled"; this might help you. I hope so!!
I've been in a wheelchair (after a car wreck), and know ist hand that it takes extra effort to just live!! God Bless.---Texasmujer

[susandel]

Texasmujer,

I have never seen any of your posts and I am surprised you found this...it is so old. I am very tired tonight, had a long day so I will contact you Saturday. I am glad you are here and glad you are willing to lend a hand. We will see what happens.

By the way my mother was a Social Worker years and years ago before she was married and I know from her stories it is a job that does not get the recognition it deserves. You worked for free almost didn't you? A thank you would have been nice once and a while too but you will get what is coming to you one day. How long have you been free from the working world?

Thanks for contacting me........until Saturday. Sleep well.....Susan

[Texasmujer]

Hi, Susandel!! I've just been "browsing the site", and ran across your message, and thought that I've "been there"---in a way! I think we might have something i common...I was injured ina car accident, and for awhile, couldn't do much more than just sit in a wheel chair...anyway, like I said, I am a xocial worker, and yeah, the field is sortof 'strange', which means that I have a love/hate relationship with it; on the one hand, I think people NEED to do more ontheir own,; this is SO MUCH BETTER for them!! BUT at the same time, I recognize that life just throughs some people such hurdles that its more than appropriate to lend help, and sometimes that help has to be SO MUCH!! Yet, we can't give up. Does this make any sense to you? Anyway, have you checked out that site in http://www.Rampantscotland.com? Did it have any helpful information for you? Oh, and while you read my stuff: I DO havae nerve damage (my left side), and sometimes I'll make a lot of errors..that meaans that my left side is not 'working' on that day...I think you can understand. (But, you know, now it seems SO ordinary to me---and I use to be SO NORMAL!! and now I feel like THAT word(normal) is SO "FUNNY";like what IS NORMAL?) I actually feel like my eyes were shut when I could do what I wanted WHEN I wanted; now
I've come the full circle, only I'm so aware of how life is so transient...Oh, I'll SHUT up...I am NOT a philosopher...far from it...I'll look for your e-mails!! It's SO "neat" to 'hear from you! I look forward to getting more e-mails from you!! C-U, TXmujer

[Texasmujer]

I DO get carried away, Susandel. If you are tired, then you need to rest, that is verey important. You wrote that social workers pay is low; how right you are, which is why I'm not workinng in it right now; well that and the fact that I've hurt my back, and now recovering from back surgery. The recovery is coming along slowly, but I'm getting stronger. Anyway, I'll look for your e-mail!! TXmujer Reat, OK?

[lorilu569]

NORMAL I understand what you mean... In a matter of a few months I have gone from full time student (one year away from graduating with a bachelors in behavioral science), worker, active volunteer, and mom. recently I realized I became more and more fatigued. Some days it was all I could do to just get up and take a bath. After multiple doctors and multiple medications they realized that I have systemic lupus...Now I have become a captive of my own body. What used to be my motivator is now slowly dibilitating me, stress. My joints swell and it is difficult to move about as it has attacked all joints as rhumatiod would. Some days are better than others, but when you change your friends have trouble changing with you. So I am not sun shinny all the time, I am still me. When you are hit with a life changing event it is hard to be the same individual you were before. Sorry to hear about your accident and I hope you have a speedy recovery from your surgery. You are not alone..

[susandel]

TX/mujer and lorilu,

I just spent the last hour and a half writing a long letter to both of you and when I finished it and corrected it I told you how tired I was and hit BACK. I have no idae why but it erased my letter. I then went to push FORWARD and it was not even lite up. I almost cried. My whole day has been like this and it is 12:15AM and it is now Monday and is is now following into another day of crappy luck. I just want you to know I am sorry for both of you stories. I have therapy at 10:15 AM so I have to get my rest. Home therapy..there is nothing like it. Do you two collect SSI or anything. TX/mujer are you working? I take it you are. What can you do? I think you should be collecting SSI. If your left side does not work and your mind is like mine you are eligible and lorilu you too. I am to tired....have to get going........later......Susan

[Texasmujer]

Hi, Ya'll!! We can e-mail each other and see what happens. Lorilu, I know exactely how it is when a person has to cope with an immediate crisis, and life changing situations; mine was in the form of a car accident. However, I've been incrediblly fortunate to have recovered fully, with the exception of nerve damage in my left forearm. I feel like this is a reminder to me to not take anything for granted, and it's my own reminder of life's vicissitudes. Anyway, YOU two have challenges in front of you. Lorilu, I now babysit for a church, and one of the other sitters has SLE (systemic Lupus Erythemetosis), and hers is controlled with medicine! How is it where you are? Now, this might sound stupid, but are you in Scotland? Or, are you like others, and have become involved in a foreign site? And Susandel, this applies to you, too---maybe treatment here in the Staates is different, and if so, then I might be able to get you connected with some medical authorities over here...keep on top of the news, OK? Now, for both of you...you need your rest; that is most important. About SSI; yes, I have gotten it, and am using the freedom to actively /aggressively pursue getting better...with exercise. I'm very excited to say that I am SO MUCH better than I was, it almost makes me giddy. Ya'll I am SO EXCITED...I'll be in Edinburgh Nov. 23 through Dec. 1, which isn't a lot of time, I know. Will it be possible for us to meet? That would be fun. Now, can I ask you (both) some questions about your conditions? First, is anyopne using a wheelchair? (I did for awhile) Ya'll, I can mail some catalogs to you, if you'd like,for you to see if there is/are some things that will make your daily life any easier/better. Please, Please letme know if there is anything I can do! 'til later, TXmujer You two 'hang in there', OK?! Oh, and Lorilu...I'm now rather slow to warm up to people in a meaningful way, but I have this one friend who I've known for, well, ever since 7th grade; she's used to seeing me in every stage I've been in; I'm lucky that she's remarkably intellligent, understanding, and funny!! I'm sorry to say, but many people will be uncomfortable with ANY KIND of sickness, but you must realize that not everyone can deal with life's changes, and you will have to find understanding in your heart; BUT YOU CAN DO THIS!! your academic background will help you a lot; and I can go on and on and on...I really wish I could meet you two!! I'm so glad to have made this connection. 'til later