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living through fear...
it was to me when my daughter was born (forceps) and seeing she had but 2.300 grams, which is the weight premature children have. They told me about a million defects and deseases she COULD have, but never told me anything real. She was born two days after the calculated date of birth and nobody had an explanation why she was so little. And she refused to drink, too, so they gave her glucoside which came out again in an instant. They checked her blood sugar every half hour, pricking her little feet over and over and I was there, helpless and crying. Her father had left me just a month before and my parents had scarce the time for a visit, so I felt quite alone and I cried a lot. It was only prayer and a night without sleep which brought back my self confidence. I was not a bad mother and it was not my fault that she was so tiny and if I had managed so far, the Great Being would help me go on. So I informed myself about blood sugar crisis with newborn children and forced the doctor to let us go home. At home, in a quiet, comfortable atmosphere without anyone pricking her feet with needles, she drank with great appetite and gained weight every day. She has developed very normal, she is growing and learning. But I went through the most fearful moments of my life...
Sorry I pour out all that stuff on you, folks.
Anyway, I know from my studies and practical trainings about women who find that their children suffer from chronical diseases and I have witnessed their despair and, most of all, their love and their power to help their children. They help one another in experience groups and if you ask them what they have lost the day they got to know about the disease of their children, many will say that they have not lost but won: won the joy about every day they can spend with their children, joy about every smile, every little sign of hope and progress and a depth of love they did not know before.
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